Wednesday

Evy is tolerating her chemo very well so far. We have had fun and have been having some good one-on-one time to work on her physical and speech therapy. Evy lost some words with her surgery. She was already behind verbally, but the surgery set her back a bit more. A tumor the size of a mango will do that to you! I spent time teaching her the word "milk" so that she could ask instead of saying, "eh, eh, eh!" After a day or so, Evy points and says "mih!" So sweet. The smile. Oh, you know that smile! She was so proud and so was I.

Today one of her physical therapists was here and I asked if she expects a full recovery of her arm and leg. She said that she doesn't expect that Evy's fine motor skills in her hand will come back. I hear her words, but I don't really believe them. I know some may say that I am in denial, but when people tell me things like that I just think, "but you don't really know my family." Because I imagine Evelyn as a sixteen year old running around with a lacrosse stick or dancing in a musical with Bob Fosse jazz hands. So there.

Evy has been sleeping very well for the hospital. She naps on me about twice a day and then we snuggle up in our hospital bed together at night like two little snug bugs in a rug.

We're expecting to leave here on Friday. Send extra strong vibes for no infection so that we do not land back in the hospital for the holiday and have time to plan for our departure for Boston at the beginning of January.