Wednesday, January 13, 2010
Brian is with Evy getting more chemo today at the Clinic. He ran into our Oncologist's boss, the cancer bigwig at Children's National Hospital. (We are treated by Children's but get our "stuff" done at Inova Fairfax simply for convenience of location. The Children's Oncology group travels there.) He is a big name in pediatric neurology and although we have not met him, he has been very involved in reviewing Evy's MRIs and protocol and helping our doctor, who is also quite esteemed, make decisions. It looks like our NED has been stripped from us. He told Brian that the dye for the last MRI had been absorbed into something around the rim of where Evy's tumor was and he does not know what it is. It may be regrowth. We will find out more when she gets her MRI in preparation for proton beam radiation in Boston. To say that I am livid that a brief and chance encounter with this doctor brought us this news is an understatement; to say that my heart is not hurting would be a lie.