Evy Beats Cancer: 2.19.10

Friday, February 19, 2010

2.19.10

Another round of chemo done. We were happily surprised that Evy's doctor planned an out patient round of chemo this time. She is home as I write and is snug as a bug sleeping with her sister in bed. That's about it. Fingers crossed for no fevers or hospital stays after this round.

3 comments:

quilter1950February 20, 2010 at 11:22 AM
My fingers are crossed. what a nice surprise!
ReplyDelete
shahjehanalexisFebruary 21, 2010 at 10:49 AM
What a great thing to read! Nothing better than than two snug babies in bed together. The visual is great. I hope that this round goes as smoothly as everything has been going lately!
ReplyDelete
PaigeFebruary 21, 2010 at 2:12 PM
That is great! Keep it up, Evy!!
ReplyDelete

Add comment

Info

Hi, we are Jill and Brian, mama and dada to beautiful twin girls, Stella and Evelyn. Evy was diagnosed with a rare type of highly aggressive brain cancer called AT/RT in November of 2009 at the age of 22 months. She has completed her treatment, which consisted of 17 rounds of chemo over 53 weeks and concurrent proton beam radiation for six of those weeks. She is currently disease free. We now rely on MRIs every three months to make sure it has not returned.

Evy rhymes with Chevy.

For other AT/RT parents / brain tumor nerds: Evy had one mango-sized tumor located in the supratentorial region of the brain. She had a full resection. There was no metastisis to the spine. Evy completed the IRS III protocol (version 38) with 28 rounds of proton therapy radiation. She does not have the INI1 deletion. Evy had a stroke because of her tumor and is still making strides to recover from it. She can walk, but cannot yet use her right hand. So far, Evy's negative side effects from chemo and radiation have been: cardiomyopathy, permanent baldness on her radiation site, and drastic loss of natural growth hormone.

To read about Evy's ng tube feedings during treatment, click here.

Evy Beats Cancer

Friday, February 19, 2010

2.19.10

3 comments:

Info

Followers

Subscribe Now: Feed Icon

Old Posts