Evy Beats Cancer: Weekend Pics V

Thursday, September 30, 2010

Weekend Pics V

Refilling the water in the "cow", AKA learning where "milk" come from. That's why we're vegan!

Evy, when she was actually playing how you're supposed to.

Jade and Stella cruise in their tractor.

Evy shows Hailey how the water pumps work.

Stella trying to figure how she can simultaneously pump the water and put her hands in it.

1 comment:

WhinespecialistSeptember 30, 2010 at 9:47 PM
I love these pics! So great to see Sweet Matilda and Sweet Jade after hearing Jill talking about them:)
Evy looks happy as always:) Looks like you all had fun...so glad:)
xo Andie
ReplyDelete

Add comment

Info

Hi, we are Jill and Brian, mama and dada to beautiful twin girls, Stella and Evelyn. Evy was diagnosed with a rare type of highly aggressive brain cancer called AT/RT in November of 2009 at the age of 22 months. She has completed her treatment, which consisted of 17 rounds of chemo over 53 weeks and concurrent proton beam radiation for six of those weeks. She is currently disease free. We now rely on MRIs every three months to make sure it has not returned.

Evy rhymes with Chevy.

For other AT/RT parents / brain tumor nerds: Evy had one mango-sized tumor located in the supratentorial region of the brain. She had a full resection. There was no metastisis to the spine. Evy completed the IRS III protocol (version 38) with 28 rounds of proton therapy radiation. She does not have the INI1 deletion. Evy had a stroke because of her tumor and is still making strides to recover from it. She can walk, but cannot yet use her right hand. So far, Evy's negative side effects from chemo and radiation have been: cardiomyopathy, permanent baldness on her radiation site, and drastic loss of natural growth hormone.

To read about Evy's ng tube feedings during treatment, click here.

Evy Beats Cancer

Thursday, September 30, 2010

Weekend Pics V

1 comment:

Info

Followers

Subscribe Now: Feed Icon

Old Posts