Evy finished the chemo portion of round number 16 yesterday. Once we recover from this one we only have one more round to go. Really hard to believe! I just can't wait for the suffering to end. And I hope it will be her last chemo EVER. Yesterday she could not keep any food down but today she has done okay. Tomorrow we are going to see Disney on Ice with Growing Hope and the girls are very excited. Stella keeps insisting that mommy will be ice skating, too.
Yesterday marked one year since she had her stroke while going down the steps. We are not the same people we were one year and two days ago. As soon as autumn began I started having flashbacks to everything that happened last year. I have finally been able to listen to the kid's cd that we were listening to that month in the car before everything happened. Now we are listening to it all of the time and when I hear the song that I played on repeat to keep my eyes on the road for the hour + trip back to the hospital when Brian called to say she had a tumor I don't even cry. Halloween will be strange because that was the day when we realized the doctors were wrong.. no fracture, definitely a stroke. I am so relieved and thankful that she is here with us one year later. AT/RT is a beast and we have been extremely lucky. We are so thankful for the health of both of our girls!
Than you for sticking with us and reading our story. It is nice to know that there are people out there who care about us!
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All of those anniversaries are so unreal. Where does time go when your loved one is suffering? How do warriors sustain their energy day-to-day, month-to-month, year-to-year? Although we have no answers to those questions, here you are, one more round of chemo to go (remember when you had one round of chemo down, 16 to go?!?). You have managed with such grace and we are very proud of you. You certainly are not the same people...you are better!!!
ReplyDeleteEnjoy the show - especially the music surrounding Barbie. :)
Love Love
We care, we care, we care. And we LOVE you!
ReplyDeleteI am amazed at all that has happened in the last year! You guys have handled this in a way people can only hope to handle a situation of this type! Sending you lots of love:)
ReplyDeleteAndie
I remember when you came on the veggie board to tell us the news and explain that you'd be away while she was in treatment. I look forward to the day that this is all behind you. We continue to send you those magical VB vibes every day.
ReplyDeleteThere are a lot of people that you don't even know or that don't ever write to you - thinking about you and praying for your family every day! You are stronger then you ever thought possible! And Evy & Stella are adorable little people.
ReplyDeleteI am really really pissed that I didn't check your site until tonight - WE WENT TO THE DISNEY ON ICE show today at 4:30!!!! (Our seats were wayyyy up in the rafters so no wonder I didn't see you guys!!!) why why why am I sooo not smart????
ReplyDeleteAnd though I knew that this was about the time that everything happened, I wasn't sure till now...and I just want to say that Evy is a hero, Stella is a blessing, and you guys are like no other...and I am so sorry that this all happened to Evy, and all of you. Its strange how, even when its happened to you, hearing that its touched another's life is still heartbreaking. Good thing Evy is going to beat this, and good thing that this is the very last chemo ever.
Sending love and light (with a little kick to my head), Lindsay
We've never met, just exchanged a few emails, and I think of your family so often. I "check in" on Evy pretty much every day via your blog, and she's never far from my thoughts. It sounds strange, how grateful your experience has made me for the health of my own two girls, as if we should need something to remind us how lucky we are every day. But it's true, and Evy's and your strength makes me realize that should we ever experience anything like this, we have an incredible model for how to proceed, how to advocate, how to fight. Thank you.
ReplyDeleteAnd if you're back up here, I'm still available to make Sunflower pickup runs for you!
XO
Liz
I have been thinking about the one year anniversary a lot too. Halloween will never be the same. I cannot believe only one more round to go! It has flown, and dragged too. And it is my fervent wish that that is the last round anyone in our family ever has to endure!
ReplyDeletelove you. thinking of you.
ReplyDeleteWe do care about you! And delight in a year of progress towards getting this over and done with and behind you (though never forgotten, of course). xoxo - mette and zoe
ReplyDeleteI'm often amazed at how much we share on-line.
ReplyDeleteKudos to you & your family for being so brave.
Evy will be in my prayers.