This morning started off with us finding out that a second of Evy's cultures (they draw blood for them every morning) was positive for the strain of yeast, which means that the first day or two of antibiotics didn't clear it up. The doctors are a bit worried, since they don't want to give the yeast a chance to start growing in her blood stream (it's still in her line, according to the cultures). So, first thing tomorrow morning we will be getting this line taken out. It will only have been about 3 weeks since we had this one put in, but what can you do? We'll use a regular IV for a couple of days to make sure that she's getting clear cultures, and then have a PICC line placed. A PICC line is a more substantial IV line, which will travel up her arm to her heart. We spoke with the doctor about whether we wanted to put in the same style central line she has now, or switch to a port, which lies beneath the skin and thus requires less upkeep and has less chance of infection (we originally needed her current type so that she could get two types of hi-dose chemo at once, but we no longer get those doses). We decided to try and see if the PICC line can hold up for the 10 or so weeks we have left of chemo, so that we don't have to worry about wearing out her central line spots, more scars on her chest, etc. Fingers crossed.
So that means we'll have 3 more days or so in here, as long as the yeast was in her line and doesn't show up again and she remains fever free. One big disappointment in that we won't be able to all go to the second bake and craft sale that our friends at the Lab are holding for us tomorrow. The first one, way back in the winter, was held when we were still in one of our original inpatient stays. We were hoping to be able to all go to this one (we even thought ahead and schedule during one of her good weeks; oh well...) to thank everyone in person and so that some of my coworkers could meet Jill and the girls. The last one was a huge success and it was amazing how generous people were. It was a true blessing and helped us through some tough times. We'll be there in spirit.!
The rest of today was really fun. In the morning Evy and I wandered around and did our usual routine. Then, when Mama and Stella arrived we had lunch and Evy was able to grab a much needed nap. Stella and I played in the atrium (outside play area) for a while, until I accidentally hit her in the head with a basketball and made her scrape her knee and spill all of her bubbles. Figure I should toughen her up a bit. Later in the afternoon, Evy and Stella suddenly entered hyper crazy mode, and were running all over the place screaming and invading the nurses station and laughing their heads off. Evy was just in a diaper most of the time, since she had spilled water on her shirt. It wasn't long before we looked over and Stella had her pants around her ankles and had thrown off her diaper. Of course, Evy followed her lead and ripped off her diaper and started bolting down the hall. In one of those "only in a cancer ward" moments, there was bald little Evy, naked, with her nose tube and central line bobbing away, and her leg braces and sneakers still on, shrieking and laughing with delight. Everyone around was just eating it up.
After Mama and Stella headed home, we found our friend Brooke and her big sis Caitlin in the helicopter bridge (which is kind of windowed walkway that overlooks the helicopter landing area for medivac, and that a family designed with lots of helicopter decor in honor of their son). Brooke and Evy took turns sitting in one of the push cars while Caitlin would push them speeding down the hall. We all had a great time. And, of course, it just helped to tire Evy out, so bed time went nice and smoothly.
We will hopefully get into surgery first thing in the morning. This procedure should only take about 15 minutes, since they'll just be removing the old line and putting in her IV. She usually does well with the drugs, so hopefully no surprises. [EDIT] Forgot to add that I remembered that a couple of procedures ago the anesthesiologist was going to give her gas instead of IV meds. I told him that she has gotten IV meds before and done well with it. So he asked how many times (I think expecting me to say 2 or 3 or something). With proton treatment, this was a daily routine, so I told him: "oh, about 30 or 40." He looked a little shocked, then remembered the proton treatment, and just said, "OK, we'll go with that." Funny the stuff you learn around here. Wonder what kind of effect all those hours under heavy sedation from which she awakes completely stoned will have on her. Maybe that explains the running around naked while screeching? Reminds me of my college days...
Thanks again to everyone helping out with the bake sale tomorrow. Wish we could be there!