Merry Christmas, Happy New Year, and Happy 3rd birthday to Evy and Stella. Have taken a bit of a blog break as we were starting to look like a (more) normal family. The girls have been having a great time being a normal coupling, no chemo, no vomit, less meds, less appointments.
Today we had our first clinic check-up of the new year, and aren't due for an MRI for another month or so. We also had an echo/EKG of her heart, and unfortunately found out that Evy has cardiomyopathy, a weakening of her heart from the chemo. She hasn't been hampered by it (no getting out of breath, wheezing, etc.) so we hope it's not too bad and that she can strengthen the muscles. We'll be starting some new meds, and to make sure that her body reacts well to them we'll be headed into the hospital tomorrow for a few days. They'll monitor Evy to make sure her kidneys are able to handle the four heart medications she will need since they got quite a beating from chemo. Our cardiologist laid it our for us that in the best case scenario of cardiomyopathy the heart regains its strength with the medication. The worst case scenario is a heart transplant. So as we enter a new realm of scariness, we are hoping for the best once again.
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I'm praying that Evy will be the best case scenario. That sweet girl deserves a break!
ReplyDeleteMuch love from Washington...
Thinking of you and Evy. Huge ((hugs))
ReplyDeleteHolding the family in my heart, Jill!
ReplyDeletePrayers, love & light to Evy & the Carroll family.
ReplyDeletePraying for Evy and your family. You are always in our thoughts and prayers.
ReplyDeleteUgh....This sucks plain and simple. Love you guys
ReplyDeleteMuch love,
The McConnells
We are praying for Evy.
ReplyDeleteSending love and hugs!!!
Let us know if you need ANYTHING!
Thinking of your strong strong Evy.
ReplyDeleteJill Brian, Evy and Stella:
ReplyDeleteWe are thinking of you over here, and sending heart love, heart health, and heart healing.
Meghan
Thinking and praying for you guys and hoping for a best case scenario!
ReplyDeleteJill and John
Thinking of you guys! Praying for more strength for you and Evy.
ReplyDeleteI've been holding Evy and your family in my thoughts all through the holidays and into the New Year. Sending you lots of love and strength! As ever, if you should have to come back to Fairfax, please let me know if there's anything I can do to help.
ReplyDeleteXO
Liz
Oh, wow, Jill. That is such a heavy load, and you've done so well through all of this. We'll be thinking of you and Evy and the family as you plow through this challenge as well.
ReplyDeleteI think of you often Jill. Sending peace, love, and light as you walk this new path with Evy.
ReplyDeleteHappy birthday to Evy and Stella! I hope things go/went well in the hospital. We're thinking of you guys.
ReplyDeleteMy grandmother had the same thing and responded very well to medication. Hoping for the same for Evy. Thinking of you guys always...
ReplyDeletePraying so hard.
ReplyDeleteHappy Birthday to the girls.
It's so good to hear that your lives are becoming more normal.
Keep fighting, Evy.
Oh, Man!!! Poor Evy ( and you guys!!). I for one completely believe it will be best case scenario! Love to all of you!
ReplyDeleteVan and I cannot stop thinking of Evy...there are so many things flooding my head right now, but all you need to hear is that we are sending every ounce of positive energy to her, to all of you....
ReplyDeleteLove and light,
Lindsay, Van, Anna, Amelia, and Matilda
Much love to you all and a bundle of healthy vibes coming at you from over the pond. X
ReplyDeleteRoss