Merry Christmas, Happy New Year, and Happy 3rd birthday to Evy and Stella. Have taken a bit of a blog break as we were starting to look like a (more) normal family. The girls have been having a great time being a normal coupling, no chemo, no vomit, less meds, less appointments.
Today we had our first clinic check-up of the new year, and aren't due for an MRI for another month or so. We also had an echo/EKG of her heart, and unfortunately found out that Evy has cardiomyopathy, a weakening of her heart from the chemo. She hasn't been hampered by it (no getting out of breath, wheezing, etc.) so we hope it's not too bad and that she can strengthen the muscles. We'll be starting some new meds, and to make sure that her body reacts well to them we'll be headed into the hospital tomorrow for a few days. They'll monitor Evy to make sure her kidneys are able to handle the four heart medications she will need since they got quite a beating from chemo. Our cardiologist laid it our for us that in the best case scenario of cardiomyopathy the heart regains its strength with the medication. The worst case scenario is a heart transplant. So as we enter a new realm of scariness, we are hoping for the best once again.